#MyLeftBoob #BreastCancer Chronicles – Chemo Day 20: Practice Real Love, Pay it Forward

relay meeting

Day 20 Chemo Update – April 28, 2015

It’s been nearly 3 weeks of chemo and symptoms are not getting easier,but are getting easier to predict after the fact. I know I will be tired, dizzy and nauseous on Friday, Saturday and Sunday with some lingering symptoms on Mondays and Tuesdays. So as long as I know this ahead of time, I can plan around it and still work and have a life.

Last night was pretty rough. Day #3 of large clumps of hair falling out in the shower was not fun to deal with at all at 3 a.m. when I couldn’t sleep. I’d finally had enough so I grabbed my trusty scissors and cut it off.

My sister gave me an awesome sassy haircut last Thursday that I was able to enjoy for 3 days but I think the buzz cut would have been much easier to deal with. Live and learn. And hopefully I’ll never have to go through this ever again like some of my other super strong Warrior Metaplastic breast cancer sisters.

Speaking of warriors….. we had our first Bethel, CT Relay for Life team meeting last night which was awesome. Fourteen teammates showed up for my team “Wendy’s Warriors,” two donned with silly hats to show their support of my first day out in public rockin’ the chemo scarf.

One of my friends wore a huge turban and the other wore a bandana made entirely of bubble wrap! It was so nice of them to support me and make me smile. I still have a ‪‎buzz cut‬ under but the ‪scarf but I think after a few more days the “‎bald is beautiful”‬ look will be hiding underneath.

We have decided to plan two separate fundraisers: One will be in May and is for the American Cancer Society’s (ACS) Bethel Relay for Life on June 12, 2015 and we are doing this through “Wendy’s Warriors” t-shirt and bracelet sales. We will also have a small music night with giveaways and raffles to benefit ACS.

The second fundraiser will be a benefit concert in late June or early July in support of the #MyLeftBoob documentary which is being produced and filmed by Danbury-based “R Media Productions.” The purpose of the film is to raise awareness of this very rare cancer that only 1% of women are diagnosed with by chronicling my journey with Metaplastic Carcinoma since the beginning.

All proceeds from the documentary will go directly to Metaplastic Carcinoma research, testing and clinical trials. More info on both fundraisers, and the trailer, is coming soon!

The main point of all of the work I am doing throughout my battle is to raise awareness for early detection to help others. I am so fortunate, blessed and grateful to have found the lump while it was still only Stage 1 and had not spread to my lymph nodes. And I am firmly believing in faith that it won’t come back because of the 16 weeks of ACT chemo I’m going through and because we got it early.

I believe I’m here for a reason and I am not a statistic. I can use my platform of being an editor to help others remember to do self exams so they have a fighting chance. I can use my life, my survivor story, my voice to help others.

I’ve heard some people say they are worried about me because I am doing “too much” in the beginning of my battle with work, kitchen makeover, Wendy’s Warriors Relay team, awareness campaign, etc. And to them I say….. thank you for your concern but you don’t know me very well. 😉

I have always been one to juggle multiple tasks and now more than ever I need these distractions so the madness, fear and depression doesn’t take over my mind. I need to know that my fight is for a reason– not just to help myself get better, but to help others when I am well. These are welcome distractions.

Since I work from home, I am able to rest when I need to and relax and let the helpers help…. the wonderful friends, family and volunteers from The SCOTTY Fund who have been helping with dinners, a cleaning crew from The Maids of Brookfield who will be coming once a month beginning in May and the list of awesome people supporting me and lifting me up goes on and on. I could not do all that I do without all of you! So thank you!

 

Staying positive, uplifted, strong and sassy is how I will win the battle…. having faith, praying, laughing, loving, living, paying it forward. If you look very closely at the bottom left corner photo you can see my new “Love Wins” necklace that Figs Wood Fired Grill owner Kristin Tartaglia gave me. The necklaces were made to honor the life of Ana Grace Marquez, a Sandy Hook student lost in the tragedy of 12/14. Ana Grace’s memory lives in in our hearts when we share her message. #LoveWins

Whether or not you believe in God, the universe or karma, when you share goodness, kindness and love you will always win.

“This is how we’ve come to understand and experience love: Christ sacrificed his life for us. This is why we ought to live sacrificially….and not just be out for ourselves. If you see some brother or sister in need and have the means to do something about it but turn a cold shoulder and do nothing, what happens to God’s love? It disappears. And you made it disappear….let’s not just talk about love; let’s practice real love. This is the only way we’ll know we’re living truly.”

~ 1 John 3:16-18 The Message Bible

To support my breast cancer battle on my GoFundMe page to help cover the cost of mounting medical bills from 2 hospitals and 3 surgeries, please click here.

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