#MyLeftBoob #BreastCancer Chronicles: Surgery #5, the Battle Continues

Surgery #5? Aren’t you DONE yet? Yes, I know that’s what you’re thinking. Imagine how I feel!

After a year of hell, I’m so ready to be done. Cancer is like war— a war on the body, mind and spirit and treatment doesn’t end the minute you’re done with chemo, surgery and radiation. For many like me, chronic pain, swelling, anxiety attacks and the fear of recurrence is something we have to learn to live with.

It’s been a few months since I’ve updated this blog sp here’s what’s been happening since I last updated on Feb.2:

February:

David Bowie and later Prince, the legends and the bookends of my musical youth, passed away. Because David Bowie died of cancer and was a huge influence on me, being a weird goth kid, I knew I had to do something to honor him. I reconnected with old friends and we created a Bowie tribute band called Diamond Dogs…..

Photos courtesy of Lisa Weir or Autumn Photography

I celebrated one year cancer-free with friends, family, the wonderful people in my cancer support group and generous musicians who donated their time and talent to play for the benefit. It was a wonderful night, a celebration of life. I’m not sure exactly how much we raised since some sent donations directly to Ann’s Place, but I believe it was over $1,700. Thank you to all the generous donors, volunteers, bands, musicians and business owners who gave raffles and to everyone who came out to support me and Ann’s Place.

March:

My husband and I attended the St. Patrick’s Day Ball and had a shamrockin’ good time! Last year at this time I had just finished surgery and was just about to start 16 intense weeks of ACT dose dense chemo. What a difference a year makes.

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April:

I wrote and directed an original play based on Irish folklore called “The Princess and the Pirates.” It was a benefit for the Greater Danbury Irish Cultural Foundation. The play was a success and we were able to raise funds for the foundation to help them fulfill their mission of keeping Irish culture alive in the community.

Last Week/Today:

I got a brain MRI and a shoulder MRI due to persistent headaches and shoulder pain. Of course any time a cancer survivor gets a new lump or pain we always think the same thought— “Oh no. What if it’s cancer?”

I got the results back today and am happy to say— Thank God it’s not cancer!

The brain MRI results said that the headaches were probably being caused by inflammation and my diet. The doctor said I need to eat an anti-inflammatory diet and change the position that I sit at the desk on the computer. But it’s not cancer. Good news!

The bad news is that the shoulder MRI results show I have a torn rotator cuff and will probably need surgery. Who knew you could actually injure yourself while dreaming? Apparently sleeping with my right arm over my head and chest for 9 months to protect the chemo port did a number on me and there are torn ligaments and a hole in my shoulder which is causing pain whenever I do basic things like get dressed, lift, scrub, work at my desk, etc.

Doc said I have a torn rotator cuff, tendonitis, bursitis….which is it doc? All three?  I tuned out when I heard the word “surgery.” I’m getting a second opinion just in case.

I’ve been going to an occupational therapist and a physical therapist 4x/week to help with the shoulder pain and lymphedema (swelling) in my left arm and hand.

My oncologist said early on that to prevent recurrence I need to do things to feed my body, soul/mind and spirit. I also need to keep stress levels down, avoid alcohol, animal fat and exercise for 30 minutes 5x/week.

Since the orthopedic doc said physical therapy won’t help the torn rotator cuff, at least now I’ll have my mornings back and can begin my 5-step plan to take control back of my body, soul and spirit!

Going Forward:

Step 1: Get my diet under control. I met with a doctor who believes the health/food connection to illness so that means listening to what my sister (who is a nutritionist) has been telling me all along. Check out her Core Nutrition website here and like Core on Facebook. Diets don’t work. It’s better to make small changes and think about what I’m putting into my body and why.

Plan this week:

  • Drink the required amount of water each day (take your weight, divide in half, that # is the amount of ounces of water per day you should drink)
  • Start each day with lukewarm lemon water and Celtic sea salt
  • Have a kale shake 3x a week

Step 2: Start walking and doing yoga. I got 2 walking buddies and a yoga buddy— now I just have to stick to the commitment, even when they can’t. All are working moms which can be crazy. I work full-time as well. Add a husband who works 2 jobs/nights to my mix (so I don’t have a lot of help driving the girl to activities), plus 2 part-time projects and way too many doctor appointments each week and I’m juuuuust about to go insane. I know the regular routine of walking and yoga will  help to “stop the insanity.”

Plan this week:

  • Walk for 30 minutes 3 days this week, increast to 4 next week, 5 the following week
  • Do yoga once this week, increase to 2 next week, 3 the following week

Step 3: Make time for church, spirituality, God. A nutritionist came to our cancer support group and shared a study about where the oldest living people in the world are and what they have in common. Of those 5 places it was noted that those who lived past 100 had a very strong spiritual life.

Plan this week:

  • Start each day with a daily devotion from the new book I received as a gift from a friend— Daily Peace, 365 Days of Renewal
  • Go to church on Sunday

Step 4: Make time for family. Self-explanatory and should be #1. Family is everything!

Step 5: Make time for FUN! I’ve been playing in my band again which is good for the soul. Music is a healer and scheduling time to do what I love will definitely help destress.

Now let’s see if I can stick to the 5 steps.

I’ll start blogging about my progress begining tomorrow. Cheer me on or give me  a virtual kick in the pants of you see me slacking.

 

 

 

 

 

 

 

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